June 10, 2016

Eleven syllables

I mentioned in February that I'd had an endoscopy for swallowing issues. It was a blast. Who doesn't love having a camera shoved down their throat, am I right?

My doctor's theory was that I had a narrowing of the esophagus, but she was a little off. The GI doctor biopsied 6 areas, and the results that came back were cryptic and didn't give me much info. I was referred to a GI specialist, and honestly? I didn't think it was going to be a big deal.

5 of the 6 biopsies came back abnormal and I received a diagnosis of eosinophilic esophagitis (EoE). It's kind of a hard disease to explain, so you can google that if you want more info. I dedicated the four weeks following my appointment to learning how to pronounce it. It has eleven syllables, you guys.

The bottom line is that I'll need 6 - 7 more endoscopies with biopsy, the first of which was today. Unfortunately, instead of seeing improvement, the symptoms have worsened. Oh, and I have several ulcers that may or may not be related to the EoE.

My recovery from the first endoscopy wasn't all that bad. Today, however, I feel like I've just swallowed a lego brick and can't quite get it down. Will it get worse with each one? I hope not.

Next week I meet with a dietitian about an elimination diet (dairy, wheat, soy, eggs, fish and nuts), and that becomes day zero. From that day on, I'll have an endoscopy every 6 - 8 weeks, followed by adding one of the allergens back in. It's going to be a long process.

My doctor is an expert in the field, and has assured me that it's so good I didn't ignore the symptoms, because we've caught it earlier than most. So why do I find myself wishing I'd just put it off?


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